When a person we love is dying, it can be difficult to make peace with it. And when that person is a child, it is almost impossible. The loss of Juliet was hard on everyone close to her, but through their pain, her parents agreed to donate her heart. They gave another child the hope they themselves had lost. This act of love inspired us to name our hospice after Juliet.
The older I get, the more I realize that everyone bears their own cross and the death of a child is one of the most difficult trials in life. Those who have not experienced it cannot imagine the pain, helplessness, and emptiness of a parent who cannot help their child. These situations are worse when families are left to deal with them on their own.
We want to found a children's hospice, a place where experienced healthcare professionals, carers, psychologists, social workers and others provide the best possible care in a difficult time. We will offer respite care for long-term and short-term carers, as well as the end of life care.
Taking care of an ill child is a 24-hour job, regardless of other demands on parents’ lives. When parents can trust that we will care for their sick children, they will be able to focus more of their energy on balancing the other important aspects of their lives, like their other children, jobs, and self-care.
Our mobile paliative team will provide in-home support to children and their families.
We want to offer support through the care process as well as arranging formalities for families caring for terminally ill children and young people.
We want to provide families with the necessary time and environment for a dignified farewell with the privacy they need for individual mourning processes.